Shaneen Robinson-Desjarlais
APTN National News
A Manitoba family is hoping for a miracle after an incurable disease has left their young boy fighting for his life.
The genetic disorder is rare – with only a handful of cases in Canada.
3 thoughts on “Family of young boy with Leukodystrophy trying to find cash to go to U.S. for treatment”
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Did you see the letter from a Carol there…saying there’s help..has your Doctor contacted the sick children’s hospital?
There is help in Canada as well. My son also had ALD and was treated at Sick Children’s Hospital in Toronto & McMaster Children’s Hospital in Hamilton Ont.Maybe she can ask her Geneticist for a refural to see someone here to get some help ,it could be a long wait to go to the States.My heart goes out to this family it is along journey. God Bless
It’s not cancer it’s a rare brain disease
Just wanted to clarify this